Δημήτριος Α. Παππάς, MD, MPH, Επίκουρος Καθηγητής Ρευματολογίας - Ρευματολόγος - Αθήνα - Delfon

The CRF, an independent, not for profit 501(c)3 foundation, was founded in early 2014 with the recognition that a mechanism was needed to connect talented academic epidemiology researchers in rheumatic diseases with the rich observational data collected by Corrona, LLC. The CRF will be able to access all of the data which has been collected since the inception of the registry. The Foundation will connect the data with qualified academic researchers for the purpose of producing scientific publications which improve our understanding of the effects of new and existing drug treatments. It is apparent that the Corrona data are a unique resource in the US as there are no other sources of prospectively collected physician and patient-derived, observational, uniform, deep data on a very large number of patients in the unique US marketplace. The Corrona data are collected at the time of a routine clinical encounter and are derived from patient and physician questionnaires completed at regular intervals. The data include standardized outcomes derived from a rheumatologist’s examination with recording of joint counts, visual analogue scales, standardized patient-reported outcomes, laboratory values, radiographic outcomes, bone densities, infections, comorbidities and side effects/toxicities from a very large cohort receiving a representative array of therapeutic interventions in this geographic space. As such, they are an unprecedented source of reliable, and representative, data on the many patients receiving these agents in the US marketplace.